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Thalassemia.com Site Map
ABOUT US:
Our Program
Our Services
Our Facility
Our Staff
Volunteer and Intern Program
Welcome Thalassemia Interns
Welcome New Volunteers: Maggie and Clara
Thalassemia Awareness: A Volunteer Experience That Will Last a Lifetime
, by Ivanna Pincilotti
Reflections of a Volunteer"
by Zoë Oppenheimm
"Uncovering Thalassemia"
by Rilee Hakola and Denise Corriveau
"Thalassemia Awareness"
by Sushrita Neogi
News and Events
Newsletter sign-up
Dr. David Weatherall: birthday
Laurice Levine: Pope Award
Staff blog
For Physicians
How You Can Help
How to contact us
WHAT IS THALASSEMIA?
Alpha Thalassemia
Beta Thalassemia
Trait/Minor
Intermedia
Thalassemia Major
Hemoglobin H and variants
GENETICS
Genetics 101
Inheritance
Genetic Testing
Thalassemia Trait
Getting Tested for Trait
Hemoglobin E Trait
Family letter: alpha trait
Family letter: beta trait
Genetic counseling
Prevalence and Demographics
DIAGNOSIS
Symptoms
Diagnosing thalssemia
Newborn screening
Untreated thalassemia
TREATMENT
DNA testing prior to treatment
Blood transfusions
Iron overload and chelation
Introduction
Deferoxamine Desferal)
--
comprehensive guide
toxicity
supplies
administration
side effects
storage
Deferasirox (Exjade)
Deferiprone (L1/Ferriprox)
High-dose/Comb Therapy
Splenectomy
Thromboembolic disease
Hemoglobin H disease
Iron measurement
SQUID
Thalassemia checklist
Bone marrow transplant
HLA genetics
BMT factsheet
Hydroxyurea
Standard of Care Guidelines
Contents
Introduction
DNA Testing
Diagnosis
Transfusion
Chelation
Imaging to Monitor Iron Overload
Chelation Toxicity
Liver & Gallbladder disease
Endocrine Dysfunction
Cardiac Dysfunction
Pulmonary Care
Hematopoietic Cell Transplantation
Acute Infection
Dental
Nutrition
Vaccinations
Fertility and Pregnancy
Thalassemia Intermedia
Hemoglobin H Disease
Thalassemia Research
Psychosocial Support
Genetic Testing
Timetable: Clinical & Lab Evaluation
Authors
Support
References
Download the PDF
RESEARCH
Research update PDF
TCRN
Completed Studies
Think Zinc
Good Vibrations
Transfusion Quality of Life
Pain in Thalassemia
Exjade Palatability
Open Studies
Combination Chelation
TLC Study extension
Fertility
Glutamine
Thal Intermedia and Exjade
New Oral Chelator
Innate Immunity
CDC Study
Multicenter Study of Iron Overload
Mitochondrial Iron
Physical Activity Assessment
Nutrition in Thalassemia
SQUID
DXA
Upcoming Studies
Published Articles about Thalassemia
LIVING WITH THALASSEMIA
Life stages
Infant
Toddler
School age
Adolescent
Adult
Nutrition
Diet
Calcium
Immunization
Fertility & Pregnancy
Patient stories
Thuy Carpenter
Paul DiLorenzo
Meghan Foe
Jane Huynh
Rammeet Kaur
Laurice Levine
Braulio Navarro
Olivia Stahl
Siddhant Talwar
Balkarn Thind
Abby Torkelson
Karim Zamani
Resources & Support
Psychosocial
Child Life
Psychological
Social Services
Outreach Sponsorship
Provider list
Support groups
Other organizations
Painted Turtle Camp
Make-A-Wish Foundation
Italian Catholic Federation (ICF)
Perspectives Newsletters
Jan 2013
May 2012
Nov 2011
Jan 2011
Winter 2010
Winter 2009
Winter 2008
Summer 2008
Winter 2007
Summer 2007
Spring 2007
Spring 2006
Fall 2005
Summer 2003
Spring 2003
Brochure translations:
Thal disease and trait:
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Chinese
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Thai
Hemoglobin H disease:
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English
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Thai
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Northern California Comprehensive Thalassemia Center
747 52nd Street, Oakland CA 94609 • Phone: (510) 428-3651 • Fax: (510) 450-5647
© 2003-2012 Children's Hospital & Research Center Oakland
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